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PANS/PANDAS UK Charity

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

One estimate suggests that up to 1 in 200 children suffer from this condition.

 

Resources for parents including diagnostic criteria and details of local support groups. 

Resources for Medical professionals  

Resources for teachers and Schools 

Teacher training package 

Facebook group for parents/caregivers 

Facebook group for Young People age 12-17 with the condition. 

Facebook group for Adults 

Links to further Research 

Advocacy and support from the charity 

Who to contact

Contact Name
Vicky Burford
Contact Position
Secretary
E-mail
secretary@panspandasuk.org
Website
My service's website
Notes

Any Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  Affected children can be in mainstream, alternative, specialist provision or electively home educated. 

Where to go

Notes

All of Bedford covered.

Time / Date Details

Session Information
Please join our Facebook group PANS PANDAS UK
where you can obtain further support as and when needed.

Other Details

Costs

Details
Free at point of access, supported through the PANS/PANDAS UK Charity.

Availability

Referral required
No
Referral Details

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists. 

Age Bands
11-14 years old
18-25 years old
Parents and carers
15-17 years old
0-4 years old
5-10 years old