PANS/PANDAS UK Charity
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
Resources for parents including diagnostic criteria and details of local support groups.
Resources for Medical professionals
Resources for teachers and Schools
Teacher training package
Facebook group for parents/caregivers
Facebook group for Young People age 12-17 with the condition.
Facebook group for Adults
Links to further Research
Advocacy and support from the charity
Who to contact
- Contact Name
- Vicky Burford
- Contact Position
- My service's website
Any Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.
Where to go
All of Bedford covered.
Time / Date Details
- Session Information
Please join our Facebook group PANS PANDAS UK
where you can obtain further support as and when needed.
- Free at point of access, supported through the PANS/PANDAS UK Charity.
- Referral required
- Referral Details
Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.
- Age Bands
11-14 years old
18-25 years old
Parents and carers
15-17 years old
0-4 years old
5-10 years old