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Nystagmus Network -Complex Eye Condition

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The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.

The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.

Contact

Website: www.nystagmusnetwork.org 

Email: info@nystagmusnet.org 

Tel: 01427 718093

Address: 70 Hyde Vale London SE10 8HP

Social media

Linkedin: Linkedin.com/nystagmusnetwork 

Twitter: Twitter.com/NystagmusUK 

Facebook: Facebook.com/NystagmusNetwork 

Instagram: Instagram/NystagmusNetwork

 

 

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Who to contact

Contact Name
Sue Ricketts
Contact Position
Executive Information and Development Manager
Telephone
E-mail
info@nystagmusnet.org
Website
Website Address

Where to go

Name
Nystagmus Network
Address
70, Hyde Vale
London
London
London
Postcode
SE10 8HP
Get directions
Notes

We operate a virtual service and have no physical premises however we have website support and information service and telephone helpline available, 

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Time / Date Details

When is it on
24/7 Website support and information. telephone helpline weekdays 9-5
Time of day
Evening
Morning
Afternoon
Session Information
We support all age groups free of charge. Self referral via telephone or email 24/7 support and advice on website 9-5 telephone support service

Other Details

Costs

Table of costs
Table of costs
AmountCost Type
Nil special offer see 'other info'
Details
Membership is available at very low cost, however not a pre requirement to access free support and information

Availability

Referral required
No
Referral Details

We support all age groups free of charge. Self referral via telephone or email  24/7 support and advice on website  9-5 telephone support service

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Age Bands
11-14 years old
18-25 years old
Parents and carers
15-17 years old
0-4 years old
5-10 years old