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Newlife Charity for families and professionals caring for disabled and terminally ill children

Created On: 31/01/2021
Lines open Monday - Friday 9:30am - 5pm & Wednesdays until 7pm plus 24 hour answerphone
We Are Still Here Newlife is still here for disabled children and their familiesand is still running all of its core care services to provide continued support, information, disability equipment, emergency loans and specialist toys.Newlife is still here right when families need us most and will…

Nystagmus Network -Complex Eye Condition

Created On: 31/05/2021
24/7 Website support and information. telephone helpline weekdays 9-5
. The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round…
70Hyde ValeLondonLondonLondonSE10 8HP

Paediatric Occupational Therapy Service

Created On: 31/05/2019
Monday to Friday 8:30am to 5pm
 Paediatric Occupational Therapy team Developmental Skills packs  The Paediatric Occupational Therapy team are launching their Developmental Skills advice packs to support professionals and parents of children who struggle with fine motor and functional skills. The packs can be found on our new website page: https://www.cambscommunityservices.nhs.uk/Bedfordshire/services/occupational-therapy/developmental-skills-package…
Child Development CentreHill RiseKempstonBedfordBedsMK42 7EB
Wheelchair Loop Hoist Baby Toilet

PANS/PANDAS UK Charity

Created On: 01/07/2021
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.   One estimate suggests that up to 1 in 200 children suffer from this condition.   Resources for parents including diagnostic criteria and details of local…

Personal Budgets

Created On: 31/05/2019
What our service does A personal budget is an agreed amount of money that a family can use to access support for their child/young person. It is agreed by the local authority and / or the Health services. Personal budgets are a different way of…

Retina UK

Created On: 01/05/2020
Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. We support anyone with the following visual impairments: Retinitis Pigmentosa (RP),…