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Neurodiversity Support Pack (for families following a diagnosis of a neurodiversity)

Created On: 02/09/2021

Families have described the experience of their child receiving a neurodiversity diagnosis (e.g. Autism or ADHD) with mixed emotions and following the lengthy diagnosis process are left with little information, or understanding of ‘what next?’ They told us that a 'one-stop shop' for information, resources…

Hill RiseKempstonBedfordMK42 7EB

National Organisation for Foetal Alcohol Spectrum Disorder (FASD)

Created On: 01/09/2021

The National Organisation for FASD provides support to people affected by foetal alcohol spectrum disorders (FASD), their families, and their communities. It also campaigns to raise public awareness and promotes relevant policies and practices. Their current programmes focus on promoting wellbeing for those with FASD…

PANS/PANDAS UK Charity

Created On: 01/07/2021
24/7

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools. One estimate suggests that up to 1 in 200 children suffer from this condition. Resources for parents including diagnostic criteria and details of local…

Nystagmus Network -Complex Eye Condition

Created On: 31/05/2021
24/7 Website support and information. telephone helpline weekdays 9-5

. The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round…

70Hyde ValeLondonLondonLondonSE10 8HP

ONLINE Triple P - Stepping Stones for parents of children with a developmental disability and/or additional need

Created On: 02/05/2021

Stepping Stones Triple P has been developed for parents of children with a developmental disability or additional need. Because it’s based on Triple P’s proven parenting strategies, it gives you ways to deal with the kinds of childhood behaviour problems and issues that can make…

Bedford Hospital Learning Disability Liaison Service

Created On: 02/04/2021
9am to 5:30 Monday to Friday

Disability Services If you find it hard to read this you can make the writing bigger by pressing ctrl and + keys together and stop pressing the buttons when the writing is big enough. To make the writing go back to normal size press ctrl…

Lewsey RoadLutonLU4 0DZ

Newlife Charity for families and professionals caring for disabled and terminally ill children

Created On: 31/01/2021
Lines open Monday - Friday 9:30am - 5pm & Wednesdays until 7pm plus 24 hour answerphone

Helpline - Telephone number 0800 902 0095 (Free from UK mobiles and landlines) Lines open Monday - Friday 9:30am - 5pm & Wednesdays until 7pm plus 24 hour answerphone Newlife’s Care Services team provide supportive care through a national Helpline which offers information to families and professionals caring…

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

Created On: 01/01/2021

How to get home adaptations if you’re blind or partially-sighted. And some of the best adaptations you can have. If you’re blind or partially-sighted, adapting your home could help you continue to live there independently. To provide you with the best information possible about home…

Royal Society for Blind Children (RSBC)

Created On: 01/12/2020
Our services happen each week Monday to Saturday. Please see our monthly calendar for details of activities or get in contact to ask about other services.

The Royal Society for Blind Children (RSBC) offers a range of free services for vision impaired children and young people, and their families. 1. RSBC Live Life, Go Further ProgrammeThe RSBC Live Life Go Further programme includes a wide range of fun activities for vision…

Autism Beds - Educational Consultancy

Created On: 30/11/2020

This service can be accessed by professionals or parents who would like assistance in identifying, understanding and supporting young people who may face barriers to their learning and development. Our experience: Our Autism Trainer, Mandy, is a qualified autism advisory teacher with over ten years of…

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